Patient Engagement Liaison (Midwest)
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Before you apply
SalaryNo pay range posted
LocationRemote(US-Illinois); Remote(US-Michigan); Remote(US-Wisconsin); Remote(US-Indiana)
Work moderemote · United States
Typefull-time
SeniorityMid
Experience5+ yrs
Company size1,001–5,000 people
PostedSep 24, 2026 · 1mo ago
Verified live1d ago
At a glanceSummarised by Seekless from the posting.
Bachelor's degree in a related clinical or scientific discipline
5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field
Experience supporting people with rare diseases, their caregivers and advocacy organizations
An empathetic and compassionate person that can relate to rare families and their challenges
Understanding of healthcare, specialty pharmacy, pharma, and biotech industry
Maintenance of all compliance rules and confidentiality
Demonstrated leadership working as part of cross functional teams
History of building and maintaining strong relationships, internally and externally
Proficiency with Microsoft Office suite and Zoom
Excellent verbal and written communication, as well as presentation skills
Ability to work independently and collaboratively in a fast-paced matrixed team environment
An analytical thinker with excellent critical thinking skills and the ability to adapt to changing priorities and deadlines
Excellent planning, organization and time management skills
Ability to enter data quickly, confidentially and accurately into CRM
Valid driver's license and clean driving record
Up to 75% domestic travel, including overnights, weekends and evening responsibilities
Skills
Microsoft Office suite
Zoom
CRM
About the company
PTC Therapeutics is a global commercial biopharmaceutical company. For over 25 years our team has been deeply committed to a unified purpose: Extending life’s moments for children and adults living with a rare disease.
At PTC, we cultivate an inclusive culture where everyone feels valued, respected, and empowered. We welcome candidates from all backgrounds to join our team**,** fostering a strong sense of belonging.
Visit our website to learn more about our company and culture!
Site: www.ptcbio.com
Job Description Summary:
The Patient Engagement Liaison is a field-based position that supports those living with rare diseases, their caregivers and rare disease patient advocacy organizations. In this role, you will be at the heart of PTC’s efforts to connect with and support rare disease communities. This role will primarily support the Phenylketonuria (PKU) community and may also include other communities in therapeutic areas of interest to PTC.
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Job Description:
Responsibilities:
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Engages with the rare disease community, including patient advocacy organizations, to better understand the rare experience and incorporate those insights throughout PTC.
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Collaborate internally with other PTC teams to help identify, educate, build, and leverage relationships with those living with rare diseases, their caregivers, and Patient Advocacy Organizations.
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If appropriate, assist the community with resources to help remove access barriers to help gain coverage for marketed products.
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Build patient advocacy and community relationships for currently marketed product disease states and those in development, consistent with applicable regulations.
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Works cross functionally with medical, communications, commercial, legal and compliance colleagues to ensure country specific guidelines, standards and regulations are followed.
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Connect families to Patient Advocacy Organizations and resources.
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Develop, plan and execute educational programs for those living with rare diseases and their caregivers.
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Supports Patient Advocacy Organizations through shared interests in education and programs
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Work with the rare disease community to advocate for access to care and therapies
Qualifications:
•
Bachelor’s degree in a related clinical or scientific discipline including, but not limited to nursing, public health, social work, nutrition, dietetics or related field.
•
5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field.
•
Experience supporting people with rare diseases, their caregivers and advocacy organizations.
•
An empathetic and compassionate person that can relate to rare families and their challenges.
•
Understanding of healthcare, specialty pharmacy, pharma, and biotech industry.
•
Maintenance of all compliance rules and confidentiality.
•
Demonstrated leadership working as part of cross functional teams.
•
History of building and maintaining strong relationships, internally and externally.
•
Proficiency with Microsoft Office suite and zoom.
•
Excellent verbal and written communication, as well as presentation skills, including the ability to explain technical information to non-technical audiences.
•
Ability to work independently and collaboratively in a fast-paced matrixed team environment consisting of internal and external members.
•
An analytical thinker with excellent critical thinking skills and the ability to adapt to changing priorities and deadlines.
•
Excellent planning, organization and time management skills.
•
Ability to enter data quickly, confidentially and accurately into CRM.
Travel Requirements:
•
Up to 75% domestic travel, including overnights, weekends and evening responsibilities as needed. Potential for international travel as needed.
•
Valid driver’s license and clean driving record.